What treatments are available for Prader-Willi syndrome and its symptoms?
Although specific treatments vary depending on symptoms, most children with Prader-Willi syndrome will need the following:
- Good nutrition for infants.
- Human growth hormone (HGH) treatment.
- Sex hormone treatment.
- Weight management.
- Treatment of sleep disturbances.
- Various therapies.
- Behavior management.
What is the average lifespan of a person with Prader-Willi syndrome?
The age at death was noted for 425 subjects, with an average of 29.5 ± 16 years, and ranged from 2 months to 67 years; it was significantly lower among males (28 ± 16 years) than among females (32 ± 15 years) (F = 6.5; P < 0.01).
Is there a cure coming soon for Prader-Willi syndrome?
Prader-Willi syndrome has no cure. However, early diagnosis and treatment may help prevent or reduce the number of challenges that individuals with Prader-Willi syndrome may experience, and which may be more of a problem if diagnosis or treatment is delayed.
Do people with Prader-Willi ever feel full?
People with Prader-Willi syndrome want to eat constantly because they never feel full (hyperphagia), and they usually have trouble controlling their weight. Many complications of Prader-Willi syndrome are due to obesity.
Can people with Prader-Willi live alone?
Most adults with Prader-Willi syndrome are not able to live fully independent lives, such as living in their own home and having a full-time job. This is because their challenging behaviour and issues with food means these environments and situations are too demanding.
Can you live alone with Prader-Willi syndrome?
Is Prader-Willi syndrome considered a disability?
A child with Prader-Willi Syndrome (PWS) and his or her family may be entitled to receive disability benefits through Supplemental Security Income (SSI). With these benefits, the family can meet the cost related to bringing up a child with special needs.
Do people with Prader-Willi syndrome ever feel full?